Infusion #5 in— which means I am getting very
close to the end! At this point, I have figured out ways to keep most of my
chemo-related symptoms in check and I am obsessively rubbing my head to monitor
for new hair growth (it is there!). I am also still going to the gym 3-4 times per week, including one strength-training workout with my trainer per week (I wear an arm sleeve during the exercise, but am not sure this is actually necessary).
At this point, the allergists have worked out a regimen that
works well, including a slow infusion and pre-treatment with singulair and the tried-and-true
aspirin. I have not had any problems since, but do get quite bored with the
10-hours of infusion time.
Side effects of TCH & Management
In general, the steroids part of the regimen remains the
worst part for me (and my husband) because they make me batty. However, this
only lasts for three days, and, because of the desensitization unit, I am no
longer getting high-dose IV steroids, which helps a lot.
Other than the steroids, the other nagging symptom is the
metallic taste on my tongue—it is fairly predictable, and very difficult to
manage. The two strategies I have come up with are masking the taste (mint gum
works well) and acupuncture. Acupuncture does not cure the symptom entirely,
but I think it helps and is better than doing nothing.
Here are the rest of the symptoms I have experienced, and
what has helped:
Bone pain (from
neulasta): The major intervention that has helped with the bone pain is
going to the gym. I do not do a hard work out, just relatively light and short
cardio, but this keeps my joints from getting stiff and significantly reduces
the bone pain. Plus, it was recently shown that regular exercise during
chemotherapy and radiation is beneficial to cancer patients-- even during therapy. So there are many
reasons to do it! Although in the past, the medical establishment has been
reluctant to recommend exercise during acute illness, in nearly every setting
in which it has been studied (post-MI, intensive care patients, others),
exercise improves outcomes.
In addition to going to the gym, I have maintained
pre-treatment with Claritin and naproxen, then Claritin x 4 days after
injection and naproxen twice day for four days after injection. I am not sure that all of this is actually
necessary, but now that I have a system that works, I am reluctant to change
it.
Dry eyes: Use of
preservative-free eye drops on rare occasion, and acupuncture, which was
recently written up in a major ophthalmology journal as one of the optimal
treatments for this condition. Acupuncture has been demonstrated in many
clinical trials to be a very useful adjunct treatment in chemotherapy symptom
control; click on the links for a list of WHO-recommended uses and clinical trial summaries.
Peripheral Neuropathy:
I definitely experienced some peripheral neuropathy in my infusion arm after
the first infusion. This has been very well controlled (I have almost none at
this point) with both B-complex vitamins and acupuncture.
Nausea: Overall, I
have had very little nausea, but I am given aloxi prior to every infusion. What
little nausea I do get is very well controlled by acupuncture.
Reflux: Pepcid
once per day on the day of chemotherapy, and once per day for four days
following each infusion.
